Wednesday, September 21, 2011

"Keratoconus" and a PET scan

I honestly hate blogging about these kind of things, but I have promised to keep all of you updated about our Journey down cancer row and so many of you ask "how is the hubby"? It's so easy to blog about happy things and things I have created.  I just want to live in a perfect little world, but life is anything but perfect.  I have decided it's about how you handle your imperfect world.  I hope I am handling my imperfect world with class but some days I really wonder.

OK, lets start with me.   I have had some stress added to my world.  Nothing like what my husband is going through, but certainly has added to our imperfect world.  Lately I have felt that wow I just can't see very well.  I felt I really can't see near or far so WOW these soft contacts of mine really need to be looked at. 

So before my birthday in August I made my annual appointment with my Ophthalmologist.  It was time to renew my drivers license and I was sure I could not pass the eye test.  Well there in the Dr office we discovered I have "Keratoconus"  What is "Keratoconus" you might ask.  Well it's an uncommon condition where the cornea which is usually curved becomes thin and protrudes into a cone shaped cornea.  This caused a serious distortion of vision.  So yes I really was not going crazy my vision has really changed.

When I tell people they immediately look at my eyes.
 I promise you my eyes look totally normal.

Keratoconus is an inherited disorder and we have looked back through my family tree and to our knowledge we don't  have any ancestors that have gone blind.  Because it's a degenerative disease the concern is how much worse is this going to get?  That is the question we will never know.  I hope this is as bad as it will get, but there is a potential that I could slowly (hopefully it's very slow) go blind.

Good grief I have way too much scrapbooking, quilting, photography, yardwork and decorating my house to do not to mention all the fun things in life I look forward to and  I need to be able to see such as my kids growing up and starting families of there own.  This just can't be happening.  So that is when I asked the magical question.  "What is the treatment for this"

Well there is no real treatment to stop the disease.  Mild cases can be treated with glasses or hard contact lenses.  As it progresses surgery such as corneal transplant is recommended, but no guarantee it will work.  WELL, I would rather see a little bit than not at all so I told the doc that surgery is not an option and actually he agreed.  So I have been making weekly trips to my Ophthalmologist.  They have fitted me with some hard contact lenses.  Once the hard contact lens is in my eyeball it causes the cornea to form into the correct shape and I can see.  Right not with the hard contact lenses I can see 20/20 once again and it's a great feeling.  These contact lenses are a pain to use and take care of, but if it helps so I can see it's all worth it.  I am crossing my fingers and praying that this will not get any worse. 

Now for Fred.  Well he feels like a million bucks.  Has not felt this good in a really long time.  So we did a PET scan and those dang tumors in the liver and lungs are trying to grow.  So we could wait and just watch, but our Oncologist felt it would be better to hit them when they are as small as possible.

Therefore we will be starting another round of chemotherapy on Friday 9-24-11.  UGGGHHH we have just had it with chemo and didn't want to start up again and rob Fred of how he feels, but at the same time I don't want to get down the road in 3-4 months and wish we had treated.    So here we go again.  This regimen will cause him to lose his hair which he is having a hard time accepting.  I keep telling him bald is sexy.  I am not sure he is believing me.  Anyway, we appreciate the prayers sent our way as always.

Thanks so much for being such great friends.  I could have never made it this far without you.  Have a great day and "Count Your Blessing's"  Even the tiny little ones.

Sunday, September 18, 2011

Typeset Workshop Layouts

I just don't know where this week went.  Workshops were this week which keeps me on my toes, but I love having you all come and workshops are one of the biggest highlights of my life.  I know I get to visit with those that come to workshops and I LOVE helping you create your layouts, laugh, talk and socialize.

This month we worked with the "Typeset" paper and accessories.  This kit is so fun and I love, love, love this paper.  Below are the layouts minus the journaling.  I better get that done-huh?
Layout One:
This layout is a great layout for any photos you have.  We used the Cricut Art Philosophy Cartridge to cut many of the pieces for the layout. 

Layout Two:
This layout can easily be a back to school layout.  It also works great for a birthday layout.  Afterall "In A Class Of Your Own" is all about life and our journey through life.

Layout Three:
Great layout to highlight an accomplishment such as I have done here with my daughter Alyssa.  Just an overall fun layout.

Enjoy completing your layouts.  Next months layouts we will be using "Mischief" two of the layouts will be Halloween and one a Fall page.  Mark your calendars so you don't miss the fun.  If you currently are not part of the fun of workshops then email me and lets get your started.  Don't let your memories slip away. 

Have a great week and thanks for stopping by.  If you have not taken a minute to "Like" my facebook business page my facebook icon is on my sidebar.  I will be running a fun contest this week.  Watch your facebook wall for details. 

Friday, September 9, 2011

Amazing Cards and Facebook

Well I am a complete slacker.  I must say I have completely neglected my blog this last week.  I have had a few things I have been dealing with that I will tell you about later.  With everyone back to school you would think I would have tons of time, but it has been just the opposite. 

So before the weekend gets completely away from me I wanted to share some happy mail I received a couple weeks ago.  Below are two of the most amazing cards sent to me by my dear friend and upline Karen.  With Karen's permission I am posting them here.  She used SONOMA paper pack, Cricut ART PHILOSOPHY cartridge  and the September STAMP OF THE MONTH. 

Love making these flowers with the Cricut Art Philosopsy cartridge. 
Well I have several projects right now on my drawing board using these type of flowers because I love making them so much and they are so easy with the Art Philosophy cartridge.  I will post them on my facebook business page.  Yes I finally went live with my Facebook business page.  There will be  lots of fun activities, tips, tricks  and more on my facebook page.

So make sure you "LIKE" my page so you will not miss anything.  Also the feed from this blog goes directly onto my facebook page so you will be able to see everything in one place.

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Thanks for stopping by.  Have a wonderful weekend.


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